Giulia Muzzi, founder of Miles for Smiles, has spent years raising awareness about Multiple Sclerosis (MS).
Muzzi and her family founded Miles for Smiles after she was diagnosed with Relapsing-Remitting Multiple Sclerosis (RRMS) in August 2014. The fundraiser aims to raise awareness about MS and its impact on physical and emotional well-being.
"I have always been open about my journey," Muzzi said. "For those who are new here, in 2014, at the age of 21, I was diagnosed with MS. Since then, I have experienced relapses, including vertigo and numbness in my legs, feet and hands. Even today, I still feel tingling sensations in my hands and feet."
The non-profit organization hosted its ninth annual fundraising event on March 29, at the Venetian Banquet Hall in Concord, Ont.
Muzzi began treatment in 2016 and, after four years, an MRI revealed multiple lesions in her brain. This confirmed that dimethyl fumarate (Tecfidera), a disease-modifying therapy for relapsing MS, was effective in stabilizing her condition.
Muzzi underwent another MRI in January. Leading up to the scan, she reflected on how she would eventually explain her diagnosis to her children. Her three-year-old son, Sal, was particularly curious.
"Sal is very attached to my mother, so he was excited to spend time with Nonna while I went for my MRI," she said. "He stared at me with curiosity, and I tried to explain it in a way he could understand.
"I told him, 'Mama has a special bug, and I need to go into a machine that looks like a doughnut. It takes pictures of my head and back to make sure the bug is staying in one spot.' He giggled at the idea of the 'bug' and thought the machine sounded cool."
Muzzi said this was just the beginning of many conversations she would have with her children about MS.
As Miles for Smiles prepared for another year, Muzzi reflected on the legacy of Angelo Tersigni, a devoted supporter of the fundraiser who died of COVID-19 in August 2021.
"Angelo was more than a name," she said. "He was the voice, face and heart of support.
"His unwavering dedication is honoured at every event. His impact will always be remembered, not only for this fundraiser but for everyone who knew him. His family continues his efforts to ensure the success of this event each year," Muzzi said.
Last year's fundraiser raised a record-breaking $80,000. To date, Miles for Smiles has raised $400,000 to support MS research and awareness.
"Angelo, you will always hold a special place in our hearts," Muzzi said.
MS is an unpredictable and often disabling disease of the central nervous system, affecting communication between the brain and body. The BARLO Multiple Sclerosis Centre at St. Michael’s Hospital is one of the largest of its kind in North America, with clinician-scientists working to revolutionize MS research and treatment.
"As an MS doctor, I spend much of my time sitting across from patients on some of the worst days of their lives," said Dr. Morgan Ann Schellenberg, a specialist at St. Michael’s Hospital. "Many of them have big dreams and are just starting their lives. It’s difficult when they realize that a chronic neurological condition means they may have to change those plans."
Despite the challenges, organizations like Miles for Smiles bring hope to those living with MS.
"Every voice raised moves us one step closer to a world without MS," Muzzi said.
While there is no cure for MS, advancements in treatment have made the disease more manageable. Research is focused on repairing nerve damage and protecting against brain atrophy. Until a cure is found, those affected can take steps to improve their quality of life.
"Every effort counts in the journey to end MS," Muzzi said. "Whether it’s volunteering, donating or spreading awareness, the collective impact of compassionate individuals is driving change."
Social media has played a pivotal role in amplifying this message. To learn more or get involved, visit Miles for Smiles.
"Let’s keep spreading smiles and making strides toward a cure," said the Miles for Smiles website.
